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Morphia
Well, I got back from seeing my internal medicine doctor (I've been sick for a very long time) and they found that I have a high testosterone level. So, she's going to refer me to an endocrinologist to check my ovaries and adrenals. I hope its not PCOS...

But even if I do have PCOS, it still doesn't explain all of these awful symptoms I've been having.
neverending
Morphia: I have PCOS. I took LO/OVRAL (birth control). sad.gif
ilovehim
I use pads, but soon will start using tampons....cause of the "rag" smell.
neverending
You are too funny! The rag smell..........HAHAHAHAHA smile.gif
Morphia
Well, girls. I jinxed myself indeed. I was having my daily look-see today when I propped my leg up on the counter, positioned the mirror and got a faint whiff of something rotten. Its still strange though, because when I smell the discharge on my finger it has virtually no odor. It actually smells faintly of raw potatoes. But the smell emanating from my vagina smells rotten. Does anyone else here experience this???
lori
QUOTE(ilovehim @ Jun 22 2007, 01:12 PM) *
I use pads, but soon will start using tampons....cause of the "rag" smell.

FYI - Most BV sites I've read says that tampons are bad for BV-patients, because it keeps the bacteria and high-pH blood in your vagina longer (which is why I switched to pads), but The V Book says that tampons are okay. Just make sure you don't use the kind that's too absorbent - e.g., the super-size for a light flow, etc. - because that can cause vaginal ulcers.

In fact, Dr. Stewart says that women who use pads end up with more rectal germs in their vagina because the pad rubs back and forth. But she doesn't recommend against using pads, either.

Anyway, according to her, thumbs up on tampons.
sassy
I use tampons...but I switched to the non-scented kind.
ilovehim
QUOTE(lori @ Jun 23 2007, 04:27 AM) *
FYI - Most BV sites I've read says that tampons are bad for BV-patients, because it keeps the bacteria and high-pH blood in your vagina longer (which is why I switched to pads), but The V Book says that tampons are okay. Just make sure you don't use the kind that's too absorbent - e.g., the super-size for a light flow, etc. - because that can cause vaginal ulcers.

In fact, Dr. Stewart says that women who use pads end up with more rectal germs in their vagina because the pad rubs back and forth. But she doesn't recommend against using pads, either.

Anyway, according to her, thumbs up on tampons.


thanks for letting me know that... That's a relief, atleast I won't have to deal with the horrid stench anymore. (I hope) laugh.gif
ilovehim
QUOTE(Morphia @ Jun 23 2007, 01:26 AM) *
Well, girls. I jinxed myself indeed. I was having my daily look-see today when I propped my leg up on the counter, positioned the mirror and got a faint whiff of something rotten. Its still strange though, because when I smell the discharge on my finger it has virtually no odor. It actually smells faintly of raw potatoes. But the smell emanating from my vagina smells rotten. Does anyone else here experience this???



My odor changes all the time. I noticed that I never have a constant smell. It ranges from Fish, trash, shit, a buttery smell (like pop-corn), cake, pizza, cheesy, creamy....and so on and so fourth. The worst are the first three.

sassy
ilovehim: Mine smells like popcorn, too. Isn't that weird?
mfc10
QUOTE(sassy @ Jun 23 2007, 07:34 PM) *
ilovehim: Mine smells like popcorn, too. Isn't that weird?


Mine, too! And if I take a peppermint-oil capsule for my stomach, I smell like eucalyptus a few hours later.
Bizarre.

Maggie c.
arj75
Hello everyone!

I realize that ths is BV site, but since we were discussing hormones, breast lumps, and breast cancer and so forth...I wanted to mention something that I had posted earlier regarding aluminum zirconium ( in deodorant) (according to research...this was at one time linked to breast cancer.... However, after day seven of my insomnia, I usually collaspe from exhaustion, but a new broadcast woke me from sleep... claiming that researchers are now revoking this link to breast cancer....(I don't think I was dreaming..I think I heard this..who knows..) maybe the Secret deodorant company paid them off to say this..lol (I'm just teasing..) Are researchers researching our research? LOL.

Also, I wanted to thank Lori for all the time and work she has spent on "the blog", pretty soon her blog will need a mini blog. lol I wish we had a payroll department here.

But may I please keep my "Yeast monster" around for awhile? Please? At least on a short leash?) lol I just wanted to quote this information from the V-book...

Our pal Lizzy says....p 203...(I'm just listing her last statement.) The vast majority of medical practitioners, however, roundly dispute such connections, although good studies have not been done...... (Regarding cause or effect of yeast being cause of disease)

The popcorn smell..lol....my sister says her snatch smells like onions after eating them... we smell like what we eat?? lol
ilovehim



LOL I thought I was the only one with the pop-corn smell. lol


"we smell like what we eat"...I think what we consume does affect our odor, not only vaginal odor but body odor as well. The odd thing is that I have not ate pop-corn in a looooong time. sad.gif
anitsirhc
so on friday i noticed a little discharge coming out so i put a liner on, and then next time i went to go to the bathroom it was thick (not gooey, almost like powdery??) whitish, yellowish, brownish discharge. and it smelled like onions/garlic. but i had garlic herb potato chips that day so that could have been why i smelled like that. but anyway i put a yeast arrest in at night and since then i've been fine. it's only sunday but we'll see. maybe i'll have to just use one yeast arrest every once in a while, which i am very fine with.
anitsirhc
oops.. i hit post too many times. double post haha.
arj75
QUOTE(ilovehim @ Jun 24 2007, 01:47 PM) *
LOL I thought I was the only one with the pop-corn smell. lol
"we smell like what we eat"...I think what we consume does affect our odor, not only vaginal odor but body odor as well. The odd thing is that I have not ate pop-corn in a looooong time. sad.gif


I think the different smells that linger around from time to time are from caused by foods we eat... I think of it this way...the colors yellow and black...make green...pineapple and spinach...make.....??

This is to much TMI, but my ex's love juice tasted different from time to time, depending on what he ate.

Maybe we need a blood hound to join the team to detect early warning signals of BV. lol

I keep a food journal, but I am also gonna start keeping better track of my menstrual cycle..the day I start..the hour ..minute if possible. lol Keep track of how long they last and so forth...the discharge that varies from day to day.

I spoke to my pharmacist this weekend, he says that he knows of doctors putting women on birthcontrol for the sole reason to regulate their hormones better.... But for members like Cancan, of course this is not an option as she is planning to add a member to her family.....

I am still BV free right now. I am in total shock. lol



lori
QUOTE(arj75 @ Jun 24 2007, 11:18 AM) *
Also, I wanted to thank Lori for all the time and work she has spent on "the blog", pretty soon her blog will need a mini blog. lol I wish we had a payroll department here.

You're welcome Arj! I'm glad you find it helpful.

QUOTE(arj75 @ Jun 24 2007, 11:18 AM) *
The popcorn smell..lol....my sister says her snatch smells like onions after eating them... we smell like what we eat?? lol

I definitely think what you eat makes a difference! I've been drinking a lot of Naked Juice (green machine) lately, and I swear that's what I smell like! It's not a bad smell so I don't mind. But it's weird.

Congrats on being BV-free for a while! Hope relief lasts for us.
kattkiddy

I am so frustrated with this. I am 14 weeks pregnant and I have had bv three times! The Dr. says it is common in pregnant women but I know that it can affect the baby. I've tried two different creams and it is reoccuring, does anyone have any suggestions?
lori
QUOTE(kattkiddy @ Jun 24 2007, 08:49 PM) *
I am so frustrated with this. I am 14 weeks pregnant and I have had bv three times! The Dr. says it is common in pregnant women but I know that it can affect the baby. I've tried two different creams and it is reoccuring, does anyone have any suggestions?

Probiotics. Fem-dophilus in particular. Check out my blog (link is in my sig) for more info. Let your doctor know you're planning to take it - let us know what s/he says.

However, aside from probiotics, you should definitely NOT use any of the other products on that list, esp. boric acid. (Maybe RePhresh is okay - I think the insert says it's okay to use during pregnancy. But it doesn't work that well.)

Here's the info. directly from my blog:

QUOTE
Fem-Dophilus (Jarrow)
  • Cons: expensive
  • Conclusion: several members have reported good results; buy it refrigerated (iHerb.com looks like the best online source)
neverending
Who else here has social anxiety or depression and what are you taking/doing to overcome this problem?
arj75
QUOTE(neverending @ Jun 25 2007, 10:08 AM) *
Who else here has social anxiety or depression and what are you taking/doing to overcome this problem?


Neverending, what a great question! I am still a little confused as to whether I am depressed or not....I don't feel depressed, but I am still learning to cope with the tragic loss of my best friend who was murdered, almost one year ago. What I do suffer from and have been for quite sometime is anxiety. And it is horrible. My anxiety level the day before my period.. is something that I don't even know how to describe....

One of the many quacks I have seen.. put me on prozac. All I can tell you is that I have never have had suicidal thoughts in my whole life, but my third week into taking to the medication, I was ready to put a gun to my head. I threw it in the trash, and I am no longer having those feelings. Just anxiety and insomnia...

I have been making changes in my diet, and taking 1500 mg of vitamin C, and a stress B vitamin tab (3 in morning and 3 in evening...

I am hoping that I can overcome this with proper diet and exercise....
neverending
I'm sorry to hear that arj75. Have you tried that L-theanine yet?
cinderflower
arj75, i highly recommend st. john's wort, valerian root or kava kava if you aren't already taking a prescription SSRI/SNRI. the only thing i noticed from them was sort of a build-up of grogginess after a couple of months or so of taking it every night, (not all of them at once, i varied them) but once i got cymbalta, i quit taking all of them. i took prozac as well and it had weird side effects. i am on a very low (40 mg.) dosage of cymbalta and you might want to try it. the only warning i will offer is that like effexor, it's supposed to be really hard to kick. but i've been taking it almost a year now and am extremely pleased with it. in other words--i went so long without finding anything at all that worked, i have no intention of stopping it unless it stops being effective for some reason.
arj75
QUOTE(neverending @ Jun 25 2007, 03:09 PM) *
I'm sorry to hear that arj75. Have you tried that L-theanine yet?


Nope neverending, I haven't tried that yet. (have it in my stock pile though lol) I am a little scared about putting anything into my body right now. lol. Honestly, I have noticed improvement (a little) with what I have been doing. I'm trying to stick with mind over body and see how nuts I become first I guess. lol. I need something to relax me, without putting me under a voodoo spell. lol.

Anyone have any ideas of how to slow down a metabolism? I'm 5'9 and 120 pounds... I have been checked for hyperthyroidism, but it came back ok. Is there such a thing as pre-hyperthyroidism? I'm to burnt-out of researching to research it right now. lol

Cinderflower, Thanks for the advice...(I'm not being a smart ass) the fact that you have only had bv a few times and you are here to help...it makes me admire your character greatly!

Also, in the Sunday morning Indy paper...you'll never guess...FDA is putting a "crack down" on the vitamins, herbs, and everything else lots of us here use.

Why all of a sudden do they give a shit..they are passing drugs with a 38% success rate!
arj75
Hey everyone,

I had my colpo today. I had thought the bv was gone (for now) however, according to him, it is still there. Also, I have a yeast infection (according to him) however, I have no symtoms of this either. I told him that I have been dealing with bv for 2 years...and he suggested to me that my partner was cheating on me. I have no partner at this time. Not only did he insult me, but also made a comment of my "doctor" hopping list. I'd just love to find a doctor that has even the smallest bit of empathy for women that are dealing with this. Do they exist? I really wanted to rip his head off, but I felt like if I got started, I wouldn't be able to shut-up. I go back in two weeks for the results of my colpo.

CanCan
QUOTE(cinderflower @ Jun 25 2007, 05:15 PM) *
arj75, i highly recommend st. john's wort, valerian root or kava kava if you aren't already taking a prescription SSRI/SNRI. the only thing i noticed from them was sort of a build-up of grogginess after a couple of months or so of taking it every night, (not all of them at once, i varied them) but once i got cymbalta, i quit taking all of them. i took prozac as well and it had weird side effects. i am on a very low (40 mg.) dosage of cymbalta and you might want to try it. the only warning i will offer is that like effexor, it's supposed to be really hard to kick. but i've been taking it almost a year now and am extremely pleased with it. in other words--i went so long without finding anything at all that worked, i have no intention of stopping it unless it stops being effective for some reason.


I think St. John's Wort is amazing. It works really well on anxiety, not just depression. My doctor told me to try it, and it is working for me. It is in liquid form, but not the tiny sublingual bottle, it's a large 8oz bottle. I didn't want to take the pills, because they take too long to digest. I only take a tiny bit of it at a time, 1/4 of a teaspoon, and just keep it under my tongue for a minute or two, because it works best sublingually. When you feel stressed out or anxious, you take the liquid, and it works right away. The brand I am using is so great, I wish I could tell you what it is called, but I read the label, and it doesn't seem to have the company name on it. And I can't seem to find it on the internet. I got it from my doctor.

I am also still taking a tiny amount of L-Theanine (like 1/6 of a capsule) every morning. It seems to be working very well. I'm also taking L-Tyrosine (1/6 of a capsule). Because it is also good for improving your mood. And I feel normal - not at all zoned out or tired.
CanCan
QUOTE(arj75 @ Jun 25 2007, 10:20 PM) *
Nope neverending, I haven't tried that yet. (have it in my stock pile though lol) I am a little scared about putting anything into my body right now. lol. Honestly, I have noticed improvement (a little) with what I have been doing. I'm trying to stick with mind over body and see how nuts I become first I guess. lol. I need something to relax me, without putting me under a voodoo spell. lol.

Anyone have any ideas of how to slow down a metabolism? I'm 5'9 and 120 pounds... I have been checked for hyperthyroidism, but it came back ok. Is there such a thing as pre-hyperthyroidism? I'm to burnt-out of researching to research it right now. lol


What are you feeling exactly? Here is some info on hyperthyroidism:

http://www.digitalnaturopath.com/cond/C16761.html

I read this one about hypothyroidism, because it pertains to me:

http://www.digitalnaturopath.com/cond/C20313.html
cheryl
Hello to all first time here. My head is spinning after all the reading but at least I dont feel alone now I started having problems about 7 months ago when I started trying to douche with alum Bad Bad idea!! I STARTED WITH A BURNING SENSATION (UNDERSTANDABLE!!) then started having a discharge kind of light yellow with a little dark brown also messy thick gross I have not noticed much smell but the burning is bad. I waited to go to Dr. for about 5 months no insurance and afraid of going! anyway I did go and she ran all tests came back BV got the 7 day meds pills and it seemed like it was almost gone like the meds were working but just not long enough course of meds?? anyway I called Dr. shes been great { nurse practitioner} and she said i possibly got a yeast after taking the antibiotic for the BV I told her I have had maybe 3 yeast infections in my life and this doesnt seem like yeast she insisted so i got the one pill script for yeast maybe i did have a little yeast because it did take some of the inflamation away but still same discharge and burning I've read that some people need to take a longer dose of the antiobiotics and this does help them? I want to call and ask her for another script but I'm afraid she's going to try to talk me out of it. Anyway meanwhile I've used acv hp garlic tea tree oil am going to store tonight to get rephresh maybe will try baking soda dove soap or phisoderm ?? good luck to all Cheryl smile.gif
lori
QUOTE(arj75 @ Jun 26 2007, 08:31 AM) *
I had my colpo today. I had thought the bv was gone (for now) however, according to him, it is still there. Also, I have a yeast infection (according to him) however, I have no symtoms of this either. I told him that I have been dealing with bv for 2 years...and he suggested to me that my partner was cheating on me. I have no partner at this time. Not only did he insult me, but also made a comment of my "doctor" hopping list. I'd just love to find a doctor that has even the smallest bit of empathy for women that are dealing with this. Do they exist? I really wanted to rip his head off, but I felt like if I got started, I wouldn't be able to shut-up.

Hey Arj.

I have no idea if your doctor is being an ass, but trying to get women to consider that their partner is cheating is actually standard protocol. A lot of women are victims of their men fooling around on them, so gynos have to try and get to the bottom of that. Hopefully he was tactful about it.

As far as the doctor-hopping - if you've had a lot of different doctors, that does always raise a question mark. So I would EXPLAIN to him cogently that it's because they haven't helped you with your problem. Hopefully he's still not as ass after that.

What meds did he prescribe for your BV?
arj75
QUOTE(lori @ Jun 26 2007, 04:11 PM) *
Hey Arj.

I have no idea if your doctor is being an ass, but trying to get women to consider that their partner is cheating is actually standard protocol. A lot of women are victims of their men fooling around on them, so gynos have to try and get to the bottom of that. Hopefully he was tactful about it.

As far as the doctor-hopping - if you've had a lot of different doctors, that does always raise a question mark. So I would EXPLAIN to him cogently that it's because they haven't helped you with your problem. Hopefully he's still not as ass after that.

What meds did he prescribe for your BV?



Lori, I explained to him that BV returns with, or without sex, also after my periods, sometimes even between. I understand that a lot of women do have men fooling around on them without their knowledge...but this man was a total dipshit, and lacked any bedside manner. I explained the doctor hopping thing to him, and he had no comment....

As for the meds....Flagyl 500 mg twice a day (7 days) and diflucan....

Maybe someone can help me understand this...BV is a bacterial imbalance..but yet it is causing infections in our urinary tracts and a possible cause for IBS It doesnt make any sense.

Nor does it make sense that I have a yeast infection...without any symtoms...the BV I can understand, but the stinch is not present at this time....

He says their is no link with hormone involvement to bv...however, I am pairing up with Dr. Stewart on this one. I also asked him a few other questions of which he could not even answer. So when I go back for the results of my colpo I will be bringing some information for him so he can maybe have a clue of how to care for the next unlucky girl that has to deal with this crap. (he knew nothing about the meds causing strep b overgrowth, the recent drug that was approved..whatever that name was, nor did had he heard of mobiluncus.



arj75
I don't know how many of you have got the V-book yet..but I had read some comments about women refraining from oral sex, because they felt it was a trigger for their BV..maybe its the yeast that is the trigger....

Men need tested for yeast infections, research has proved that yeast infections are passed to us from recieving oral sex And they do need treatment. His mouth should be cultured for yeast, and if positive, he should be treated. Also, his semen needs checked too. (This is in page 199 of V-book)

Also, in Europe, the are using the flora we have discussed earlier....I'm taking a vacation. It's really frustrating that they have those treatment options there..but we are still sitting here waiting for more treatment options. The FDA needs some fire put under their ass
anitsirhc
ok so after using the yeast arrest for a month the bv was gone for 5 days, came back so i put another one in, gone for 3 days, and yesterday it came back again, so i inserted one tonight. now i'm starting to get depressed again. i don't want to have to put this in every 3 days for the rest of my life. i guess it's on to the next thing. maybe i will try estriol however you spell it. i feel like crying.
lori
QUOTE(anitsirhc @ Jun 26 2007, 09:33 PM) *
ok so after using the yeast arrest for a month the bv was gone for 5 days, came back so i put another one in, gone for 3 days, and yesterday it came back again, so i inserted one tonight. now i'm starting to get depressed again. i don't want to have to put this in every 3 days for the rest of my life. i guess it's on to the next thing. maybe i will try estriol however you spell it. i feel like crying.

Don't use Estroil.

Neverending has been posting since Page 1 of this thread that she has a hormone imbalance, atrophic vaginitis, and now she has PCOS. Her issue isn't really BV. What works for her isn't going to apply to most anyone here. Read this entire thread if you want more details.

Do not use a product that you buy from some PO Box that comes in an unlabeled jar with no instructions. And don't stick some hormone product in your vagina without confirming that you have a hormonal problem from a doctor.

I've already wrote in my blog (and The V Book also confirms) that boric acid is not a cure. It keeps the infection at bay while you're using it, at best. You've been diagnosed with BV at PP and you refused to take the meds. Using boric acid will only control the symptoms for a while, but it will not cure you. That's why the symptoms come back when you stop using it.
anitsirhc
QUOTE(lori @ Jun 27 2007, 01:07 AM) *
Don't use Estroil.

Neverending has been posting since Page 1 of this thread that she has a hormone imbalance, atrophic vaginitis, and now she has PCOS. Her issue isn't really BV.

Do not use a product that you buy from some PO Box that comes in an unlabeled jar with no instructions. And don't stick this hormone product in your vagina without confirming that you have a hormonal problem from a doctor.

I've already wrote in my blog (and The V Book also confirms) that boric acid is not a cure. It keeps the infection at bay while you're using it, at best. You've been diagnosed with BV at PP and you refused to take the meds. Using boric acid will only control the symptoms for a while, but it will not cure you. That's why the symptoms come back when you stop using it.


lori, i've refused to take the medicatios because i've used them numerous times and they don't work. why would i take something over and over again when i know it doesn't work? i'm very desperate to find something that works and that's why i try things that other people on here have tried successfully.

it would be stupid of me to take the same medications the doctor give me over and over again when it just comes back a lot worse after every time i take it. so yes, i refuse to take the medications. no i'm not going to go through a week of flagyl every month to waste money and time and probably do harm to my body, not to mention feel like crap. only to have it come back a week later a million times worse than before. no thank you.

i'm in a terrible mood as it is because this didn't work, honestly i don't need you telling me that boric acid won't work when i've been reading this forum longer than you have. i came here to vent, not for someone to talk to me like i'm stupid for thinking something might have worked for a change.

by the way, neverending was not the only person who had success with the estroil. and who are you to say her problem wasn't bv?
lori
QUOTE(anitsirhc @ Jun 26 2007, 10:15 PM) *
honestly i don't need you telling me that boric acid won't work when i've been reading this forum longer than you have. i came here to vent, not for someone to talk to me like i'm stupid for thinking something might have worked for a change.

And I read the entire thread, so who's been here longer is not relevant. And venting is fine, but you're having problems because you knowingly failed to take meds for a diagnosed, active infection. What do you expect anyone to say?

Flagyl has a pretty high efficacy rate. It's not that it doesn't work, it's that the infection recurs. There is a difference.

QUOTE(anitsirhc @ Jun 26 2007, 10:15 PM) *
by the way, neverending was not the only person who had success with the estroil. and who are you to say her problem wasn't bv?

Because she's been insistent that she has a hormonal problem since Page 1 of this thread. It's called atrophic vaginitis, and she's the one who says that she's had that ... for well over a year. It's a different problem that's treated with different meds. It's fine that she posts here, but for some reason, no one (including her) seems to realize that it's a different condition.

Estroil comes in an unlabeled jar without instructions (read the thread). But about 6 people ordered it from this thread (and who knows how many lurkers), and it only allegedly worked for one person besides Neverending.

Neverending, if you're reading - it's very irresponsible of you that you've been recommending this product to other members in here, after insisting that you have atrophic vaginitis! It's a different condition! At the very least, you should have suggested that members first verify their hormonal problems with their doctors!

As another member posted (see June 17) - you shouldn't mess around with hormone products. At least not from some quack who sells unlabeled hormone pills from a PO Box in Irvine, California.
anitsirhc
QUOTE(lori @ Jun 27 2007, 01:47 AM) *
And I read the entire thread, so who's been here longer is not relevant. And venting is fine, but you're having problems because you knowingly failed to take meds for a diagnosed, active infection. What do you expect anyone to say?

Flagyl has a pretty high efficacy rate. It's not that it doesn't work, it's that the infection recurs. There is a difference.


if you've read the entire thread then you would know that a lot of people are sick of taking antibiotics. who cares if it's recurring? if taking flagyl is not KEEPING BV AWAY WHY THE HELL WOULD I KEEP TAKING IT?! AND IF IT'S SO SUCCESSFULL THAN WHY DOES THIS THREAD EVEN EXIST?! IF FLAGYL CURED BV THEN NOBODY WOULD BE WRITING HERE BECAUSE NOBODY WOULD HAVE IT ANYMORE! what do i expect anyone to say? ANYONE?! do you see anyone else writing to me about not taking the antibiotics? no! because everyone else understands! you're the only one writing about it! nobody else on here talks to anybody like you do. you think you know everything and that you own the board or something. i've had this problem for almost a year and i'm desperate to try anything. if estriol worked for neverending why shouldn't she recommend it?! we're here to share what works and what doesn't work for us. if it worked for her and someone else who says it won't work for me? or someone else?! and if it works for me i'm damn well going to recommend it to other people. that's why people come here!!! i don't understand you. you can stop writing to me because i'm blocking you. i'm sick of your shit.

lori
QUOTE(anitsirhc @ Jun 26 2007, 11:07 PM) *
if you've read the entire thread then you would know that a lot of people are sick of taking antibiotics. who cares if it's recurring?

Because the meds CURE the infection and then it RECURS. To say that it "doesn't work" is inaccurate and misleading.

Why? Because there is unfortunately no other CURE besides pharmaceuticals. (Sucks, but true.) So you need to take the drugs for a CURE, and then you need to figure out why it RECURS so you can STOP THE RECURRENCE. (This is called the vicious cycle, and quite a few recent medical sources have described it.)

And I think we've figured out WHY THE RECURRENCES HAPPEN (which I've been posting about non-stop for two months). Does that mean I know everything? No. But at least my information isn't based on crackpot theories.

You're not going to find relief if you have an active infection - by avoiding the meds. It's as simple as that.

QUOTE(anitsirhc @ Jun 26 2007, 11:07 PM) *
nobody else on here talks to anybody like you do. you think you know everything and that you own the board or something.

Sorry if I come across that way. But I am pretty frustrated with the incredible stupidity in this thread. For example, after reading this thread, you thought you should try to cure your infection with Yeast Arrest rather than taking meds. And it didn't work and now you're frustrated. This thread gave you bad information, and I think that's sad.

I appreciate the support and good info. in this thread (and there IS good info), but it's also a loooong record of women trying really stupid things and shoving all kinds of things in their vaginas and even injuring themselves. Trust me, I don't feel above anyone - I've had my own experience of sticking things in my vagina and messing things up (Gy-natren, sold everywhere). And it sucks that we have to resort to things like that, and there aren't better solutions out there for us. But at least I learned from that experience and am trying to help others not make the same mistake.

As far as whether I have any credibility in this thread is completely up to the reader's judgment. All I do is try to present FACTS and opinions BASED ON FACTS. I've even changed my mind about things (based on newfound facts) and have even admitted I'm wrong. I back up what I say, period. No one has to listen. But even those people who've cussed me out (jewelscando, Morphia) have told me that they find my blog and posts "awesome" and "helpful" - right until the time they decide they hate me and I'm a horrible bitch and they will block me, blah blah. Even you can't actually dispute anything I say, you're just mad because I think what you're doing is stupid.

QUOTE(anitsirhc @ Jun 26 2007, 11:07 PM) *
you can stop writing to me because i'm blocking you. i'm sick of your shit.

That's nice.

But there is nothing I said today that is untrue or wrong.

So you think:

- ordering unlabeled hormone products off the internet from a PO Box
- based on the recommendation of a member who has said repeatedly for over a year, that she has a different condition than you have

is a better idea than listening to your doctor? That's fine. It's your money and your vagina. But allow me to raise a red flag for the benefit of other readers.
lapis
QUOTE(lori @ Jun 27 2007, 01:34 AM) *
Why? Because there is unfortunately no other CURE besides pharmaceuticals. (Sucks, but true.)


Hi. I am sorry Lori, but the assertions you make in your post are inaccurate and damaging for those who seek alternatives. I suffered from recurring bv, yeast, uti's, and kidney infections for three years and thousands of dollars. I took my meds, tried boric acid, etc., and went to specialist after specialist. The medications were treatments, not cures. Ultimately, my bv cycle ended after I quit the pill, moved away, and changed partners. I actively had bv when these lifestyle changes happened and it subsided for some reason. The medical establishment had nothing to offer me except fore suffering, but I hope that it helps many sufering people out there. I want to share my story to offset the suggestion that there is no other way than the medical route and that this never ends. in other words, recovery can take on all kinds of shapes, whether spiritual, medical and/or physical and it can happen! Good luck everybody!
lori
QUOTE(lapis @ Jun 27 2007, 01:49 AM) *
Hi. I am sorry Lori, but the assertions you make in your post are inaccurate and damaging for those who seek alternatives.

Lapis, if you read my blog and saw my post history, you will see that using pharmaceuticals is NOT the only thing I recommend, and I recognize that lifestyle changes is essential (although it's impossible to know exactly which changes will help who). And if you read this entire thread, you will see that no one has found an alternate cure for an ACTIVE infection that doesn't involve prescription meds.

What IS dangerous is to let an active infection linger because research increasingly shows that untreated BV infection poses more serious health concerns than previously known. Not to mention that you could think you have BV, but have another problem instead (an STD, or another type of vaginitis).

I've never said that alternative treatments and/or lifestyle changes should not be sought. And I also know that doctors can be unhelpful (trust me, read my post history). But do you have anything better than - dumping our partners and moving away?

And just to make my position clear: I do not poo on every suggestion in here. But ordering unlabeled hormone products off the internet? Bad idea. Sticking flagyl tablets up your vagina? Bad idea. People have every right to do anything they want - scrub your yoni with Ajax if you think that's a good idea. But jeebus, someone needs to have the common sense to speak up and say, "Don't try this at home, kids!" Because ... Holy fuckballs. I mean, really.
sassy
YIKES. I will say that I told everyone that boric acid is temporary. I still use it...but that's because I want to occasionally be able to have smell-free sex. It's not a cure, though. It's still a great product, and it certainly can be used after antibiotics to ward off new BV or yeast.

I also never liked the idea of trying hormones. Changing the hormones of your body without a doctor's help is really dangerous.

That being said, I understand not wanting to take antibiotics. I don't plan on taking them anymore. They might "cure" me for a week, but then BV comes back. And the side effects aren't worth it.

I don't think anyone on here has given intentional bad information. They just share what works for them.
lapis
QUOTE(lori @ Jun 27 2007, 04:40 AM) *
But do you have anything better than - dumping our partners and moving away?


Leaving coincided with the end of my three years of bv; it was the context of my life at that time, not an intentional solution. Taking a break from sex and then using condoms without spermacide (as opposed to the pill or without a barrier), taking natural cranberry pills daily to prevent urinary tract infections, and going off all antibiotics to rebalance the body are the specific changes that helped my body heal.
lori
QUOTE(sassy @ Jun 27 2007, 04:12 AM) *
YIKES. I will say that I told everyone that boric acid is temporary. I still use it...but that's because I want to occasionally be able to have smell-free sex. It's not a cure, though. It's still a great product, and it certainly can be used after antibiotics to ward off new BV or yeast.

Yes, you did say that, Sassy. In fact, boric acid is probably the best non-pharmaceutical solution anyone has come up with as far as dealing with the smell.


QUOTE(sassy @ Jun 27 2007, 04:12 AM) *
I don't think anyone on here has given intentional bad information. They just share what works for them.

My problem is with posts like these - On 5/21, Jewelscando wrote the following post (unedited):

QUOTE(jewelscando @ May 21 2007, 07:41 PM) *
If you have true, re-occuring B.V., I hate to be the barrier of bad news, but the Flagyl, orally, won't work. It will VERY temporarily, but you will get a yeast infection, and your B.V. will return. If this is a one time case for you, then you might get lucky and it will work.

For me, Flagyl vaginally is the ONLY solution right now. Mine is gone. And, I'm not doing any preventative either.

I've had reoccuring B.V. now for 5 going on 6 yrs. And this is the first time, I've gone MONTHS, with no smell. Even after sex.

So...The solutions are here girls, Flagyl Vaginally, Estroil, and maybe 1 or two others. All these other remedies you all are trying, are not going to work, IN THE LONG RUN. AND THAT'S JUST MY OPPINION!!!!

Sure, she added "it's just my opinion" at the end, but that doesn't change the fact that this is grossly misleading, inaccurate, and potentially harmful post. And obviously some people are taking this bad advice.

Sorry to put you on the spot, Sassy. I don't want to argue with you. But I do want to justify my statements.
bvgirl
QUOTE(anitsirhc @ Jun 26 2007, 11:33 PM) *
ok so after using the yeast arrest for a month the bv was gone for 5 days, came back so i put another one in, gone for 3 days, and yesterday it came back again, so i inserted one tonight. now i'm starting to get depressed again. i don't want to have to put this in every 3 days for the rest of my life. i guess it's on to the next thing. maybe i will try estriol however you spell it. i feel like crying.


Sorry sad.gif , to hear that the yeast arrest has not helped to lessen the bv and bv symptoms. You say that you have used it for a whole month. Have you used it everyday without skipping for a whole month? Also, it states that some women may need to take it longer than a month because everyone responds differently. Being consistent and not skipping any days may help and can only improve your condition. It may be that you need more time(longer than a month) using the yeast arrest (that is if you are not having any bad side effects)and or the need to take it everyday like clockwork(being consistent no matter if you have sex or not)(remember in order to get on the maintaining cycle of the yeast arrest you first must get the bv under control), or to search out another product because you believe that the yeast arrest is not effective enough for your bv and bv symptoms. With any product you use it is up to you and(or your doctor whatever applies to you and will not harm you with bad side effects with prolong use), to decide to use it longer to see if that is what is needed to help relieve you of your symptoms but if you believe that you have been consistent and used it as directed and did not skip any dosage and you feel that is not the right product for you then understand just that and research and get involved in finding a product that will work for you. There is so much information out here for us we just have to continue to tap into it and get together on this board and spread the information around to one another. Yeast arrest is not a cure as a matter of fact I have not ran into a product( or prescribed medicine) that says it cures bv and bv symptoms. So, with that being said the deal we have in front of us is to find a product that will provide relief until they do find a cure if that happens. Also, if and when you do decide to use another product I would suggest to you that you give your vagina a break in between because using different products does not help and may irritate you. CHEER UP ..HANG IN THERE.. If I ever find anything that may be useful as far as products or anything that may help you or anyone here on this board I will pass it along...HANG IN THERE..
neverending
QUOTE(lori @ Jun 27 2007, 06:47 AM) *
And I read the entire thread, so who's been here longer is not relevant. And venting is fine, but you're having problems because you knowingly failed to take meds for a diagnosed, active infection. What do you expect anyone to say?

Flagyl has a pretty high efficacy rate. It's not that it doesn't work, it's that the infection recurs. There is a difference.
Because she's been insistent that she has a hormonal problem since Page 1 of this thread. It's called atrophic vaginitis, and she's the one who says that she's had that ... for well over a year. It's a different problem that's treated with different meds. It's fine that she posts here, but for some reason, no one (including her) seems to realize that it's a different condition.

Estroil comes in an unlabeled jar without instructions (read the thread). But about 6 people ordered it from this thread (and who knows how many lurkers), and it only allegedly worked for one person besides Neverending.

Neverending, if you're reading - it's very irresponsible of you that you've been recommending this product to other members in here, after insisting that you have atrophic vaginitis! It's a different condition! At the very least, you should have suggested that members first verify their hormonal problems with their doctors!

As another member posted (see June 17) - you shouldn't mess around with hormone products. At least not from some quack who sells unlabeled hormone pills from a PO Box in Irvine, California.


Hun, you have real problems AND TO BE COMPLETELY HONEST, YOU ARE THE ONLY QUACK THAT I (AND OTHER PEOPLE ON THIS BOARD) HAVE RUN INTO. You are not these peoples mother so you should shut your fucking mouth because like others, I as well have gotten tired of your bull shit. So, go to hell bitch. I have helped one other person who has suffered with vaginal infections as long as I had and that makes me feel damn good. Who have you helped cure? That's what I thought. NO ONE!
lori
QUOTE(bvgirl @ Jun 27 2007, 05:53 AM) *
Yeast arrest is not a cure as a matter of fact I have not ran into a product( or prescribed medicine) that says it cures bv and bv symptoms.

Untrue.

Prescription medicine says it can cure. The problem is that the BV recurs. This is an important distinction that everyone is missing. To say that the meds just "don't work" is wrong - because that means that it has no activity against BV at all, not even for a day, and that is untrue.

The key is to figure out how to prevent that recurrence. Not to beat this horse to death, but I don't know why no one gets this.

I totally understand everyone's reservations about taking the antibiotics. I wrote in my very first post that both flagyl and clindamycin have made me ill. Not to mention that I recently learned that both drugs can cause other types of vaginitis in our bodies, and possibly other long-term side effects. (Believe me, I'm quite upset about these discoveries, but it's better to know than not. Not to mention that I'm just as upset as anyone that there are no better solutions available.)

But make an informed choice rather than just rely on false statements in here that say, "antibiotics don't work."
lori
QUOTE(neverending @ Jun 27 2007, 06:57 AM) *
I have helped one other person who has suffered with vaginal infections as long as I had and that makes me feel damn good.

Good for you neverending. After over a year of posting, you've helped one person. And you've also helped at least 5 other people waste their money.

I think that every single poster in here have helped at least one other member through sharing their experiences. Except for you. Do you know why? BECAUSE YOU DON'T EVEN HAVE BV. How do I know this? Because YOU'VE BEEN SAYING THAT SINCE PAGE ONE OF THIS THREAD.

(For the life of me, I don't know why no one noticed that until now.)

Anyway, I do sincerely hope that you do stop peddling Estroil in here. It's a sketchy product from a sketchy source. And ... oh yeah, you don't even have BV. blink.gif
anitsirhc
QUOTE(bvgirl @ Jun 27 2007, 08:53 AM) *
Sorry sad.gif , to hear that the yeast arrest has not helped to lessen the bv and bv symptoms. You say that you have used it for a whole month. Have you used it everyday without skipping for a whole month? Also, it states that some women may need to take it longer than a month because everyone responds differently. Being consistent and not skipping any days may help and can only improve your condition. It may be that you need more time(longer than a month) using the yeast arrest (that is if you are not having any bad side effects)and or the need to take it everyday like clockwork(being consistent no matter if you have sex or not)(remember in order to get on the maintaining cycle of the yeast arrest you first must get the bv under control), or to search out another product because you believe that the yeast arrest is not effective enough for your bv and bv symptoms. With any product you use it is up to you and(or your doctor whatever applies to you and will not harm you with bad side effects with prolong use), to decide to use it longer to see if that is what is needed to help relieve you of your symptoms but if you believe that you have been consistent and used it as directed and did not skip any dosage and you feel that is not the right product for you then understand just that and research and get involved in finding a product that will work for you. There is so much information out here for us we just have to continue to tap into it and get together on this board and spread the information around to one another. Yeast arrest is not a cure as a matter of fact I have not ran into a product( or prescribed medicine) that says it cures bv and bv symptoms. So, with that being said the deal we have in front of us is to find a product that will provide relief until they do find a cure if that happens. Also, if and when you do decide to use another product I would suggest to you that you give your vagina a break in between because using different products does not help and may irritate you.


no no! it definitely helped and lessened the bv and symptoms. when it does come back it's actually different then it was before. it's thinner, it's like light brownish pinkish in color (instead of thick and yellowish-green) and it doesn't smell as bad, actually it's a completely different smell. it does smell though. and i did mess up with the dossage once. i went away for a long weekend and didn't realized i only had enough yeast arrest for 2 of the 4 days, so i kind of spread them out so they would last me until i got home and got a new jar. and while i did that, it did come back after like 2 days of not using it right. so maybe that's why it didn't work? that's the only time i messed up... i'm not sure if i should try it again for longer or if i should try something new. i didn't have any side effects except for a little itching once in a while. i'm going on vacation in 2 weeks to vegas and i don't want to have the green discharge while i'm there so after that i will decide what to do. i think i will only use the yeast arrest once every 2 or 3 days for now just to keep it away until i get back and decide what to do. thanks bvgirl for your help. smile.gif
neverending
QUOTE(anitsirhc @ Jun 27 2007, 06:15 AM) *
lori, i've refused to take the medicatios because i've used them numerous times and they don't work. why would i take something over and over again when i know it doesn't work? i'm very desperate to find something that works and that's why i try things that other people on here have tried successfully.

it would be stupid of me to take the same medications the doctor give me over and over again when it just comes back a lot worse after every time i take it. so yes, i refuse to take the medications. no i'm not going to go through a week of flagyl every month to waste money and time and probably do harm to my body, not to mention feel like crap. only to have it come back a week later a million times worse than before. no thank you.

i'm in a terrible mood as it is because this didn't work, honestly i don't need you telling me that boric acid won't work when i've been reading this forum longer than you have. i came here to vent, not for someone to talk to me like i'm stupid for thinking something might have worked for a change.

by the way, neverending was not the only person who had success with the estroil. and who are you to say her problem wasn't bv?
\

Hun if you listen to Lori you'll never figure out what's wrong with you and you will be here another year. I had BV/HORMONAL vag! Plan and simple. I had the shit, fish, tuna, trash, ammonia, and even the popcorn smell. I had the white milky discharge. Everything that you ladies are going through, I've been there. TRUST ME! Everytime I went to the doctor that's what I was diagnosed with BV. I've read that if you let Atrophic Vag. go for soooo long, it will mimick other symptoms (like bv). I am too young to have had Atrophic vag. and I think the doctors didn't consider it because of my age but time after time I told them I never had any problems until I stopped taking the birth control. That should have clicked in there minds but it didn't so I did what I had to do and it worked.
bvgirl
QUOTE(lori @ Jun 27 2007, 09:07 AM) *
Untrue.

Prescription medicine says it can cure. The problem is that the BV recurs. This is an important distinction that everyone is missing. To say that the meds just "don't work" is wrong - because that means that it has no activity against BV at all, not even for a day, and that is untrue.

The key is to figure out how to prevent that recurrence. Not to beat this horse to death, but I don't know why no one gets this.

I totally understand everyone's reservations about taking the antibiotics. I wrote in my very first post that both flagyl and clindamycin have made me ill. Not to mention that I recently learned that both drugs can cause other types of vaginitis in our bodies, and possibly other long-term side effects. (Believe me, I'm quite upset about these discoveries, but it's better to know than not. Not to mention that I'm just as upset as anyone that there are no better solutions available.)

But make an informed choice rather than just rely on false statements in here that say, "antibiotics don't work."



Well, if you ASK me if it cures it cures meaning that you should not have to deal with it again and or deal with it reoccurring.. Put it this way if it cures then that means that you should not have it to reocurr.. Again.. Yes, I understand that bv ocurrs and reocurrs but I do not totally BUY into a cure (an actual medicine or product) that CURES bv.. I think about it in a totally different way than you do.. That is how I feel and I do not care about what a product says it cures because if you ask me if I am to be cured by a product I should not have to deal with it reocurring.. That is how I feel no matter what anyone says or states what a product can cure regarding bv.. Maybe it is chemical and maybe its because some people can be cured by one of many many products that are out here but to me because I have been through so many prescribed medicines( and believe me the pharmaceutical companies cannot make money off of one product that "cures" someone from something they see profit and the many products they create or mastermind will only fatten their wallets so the more products that say that "cures" one of bv the more money they make off of us who are suffering chronically from re occurring bv and bv symptoms that should not be reocurring because of the "cure" product that they mastermind to cease all bv and its reoccurring epidodes.. So, why don't they "cure" the reocurring bv? Yes, I know it is related and or closely related to our ph balance but where is the "cure" for that? Thats my story and I am sticking to it... That is how I feel I have every right to feel this way becasue I am living with bv and bv symptoms even though they are not present currently these are my feelings exactly..If there is a "cure" for reocuring bv and bv symptoms let me know and then I may change the way I feel about it..
Yeast arrest has helped relieve my bv and bv symptoms but it is not a cure becasue it can come back again anytime this I know and many here know that any product whether over the counter or prescribed is not 100% guaranteed to help relieve you of bv and or cure and or stop any re ocurring bv ... I never said to anyone to not take what was prescribed to you by your doctor, I never said that prescribed medicines dont work what I am saying is do not be upset if it does not help or work.. I am making the correct steps to stay informed and keep a broad view about bv...One product or prescribed medicine that "cures" will not always benefit everyone..We all have different tolerances..
lori
QUOTE(neverending @ Jun 27 2007, 07:12 AM) *
I've read that if you let Atrophic Vag. go for soooo long, it will mimick other symptoms (like bv). I am too young to have had Atrophic vag. ...

Now you're just making stuff up.

- Atrophic vaginitis can cause vaginal discharge and irritation, period. It doesn't develop only after a "long" time
- A woman of any age can suffer from Atrophic vaginitis, not just older menopausal women

Please read, learn, and inform yourself for YOUR sake, and stop spreading misinformation for everyone else's.
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